Resources
Resource Directory
Most of the people and organizations in this guide were recommended by DSCBA members; those ones are designated with a checkmark.
- Please note that DSCBA as an organization does not formally endorse any of the people or entities in this guide. We have simply compiled a list of resources recommended by our members and similar organizations in our community.
- If you have a provider or program that you would refer to other members or if you have a new category you’d like to see added: Contact Us Here
***This resource directory is continually updated as needed***
You can open this Padlet in a new window by clicking the box/arrow in the top right corner
National Organizations
- National Down Syndrome Society: www.ndss.org
- National Down Syndrome Congress: www.ndsccenter.org
- Global Down Syndrome Foundation: www.globaldownsyndrome.org
- LuMind Down Syndrome Research and Treatment Foundation: www.LuMindIDSC.org
- Down Syndrome Education USA: www.dseusa.org
- Down Syndrome Education International: www.downsed.org
- Special Olympics: www.specialolympics.org
- Best Buddies: www.bestbuddies.org
- Spread the Word to End the Word: www.r-word.org
- Boston Children's Hospital: Down Syndrome Program, Allen C. Crocker Speaker Series
Regional Centers
- California Regional Center Guide and Descriptions: comprehensive list showing what services regional center can provide at the different ages.
- Regional Center of the East Bay: www.rceb.org
- Golden Gate Regional Center: www.ggrc.org
- San Andreas Regional Center: www.sarc.org
- North Bay Regional Center: www.nbrc.net
Bay Area Family Resource Centers
Family Resource Centers provide parent to parent support, outreach, information and referral services to families of children with disabilities and the professionals who serve them. All centers serve families of children from birth to three years of age, and many have enhanced funding which allows them to serve families of children over the age of three and individuals with developmental disabilities.
- ParentsCan Family Center, Napa: (707) 253-7444, https://parentscan.org
- Matrix Parent Network & Resource Center, Novato: (415) 884-3535, (800) 578-2592, www.matrixparents.org
- Parents Helping Parents, San Jose: (408) 727-5775, www.php.com
- Family Resource Center, Burlingame: (650) 259-0189, www.communitygatepath.com
- Family Resource Network, Oakland: (510) 547-7322, www.frnoakland.org
- Support for Families of Children With Disabilities, San Francisco: (415) 282-7494, www.supportforfamilies.org
- Care Parent Network, Concord: (925) 313-0999, www.careparentnewtwork.org
- Common Ground Society, Santa Rosa: (707) 865-8040 https://commongroundsociety.org/
Additional Links
- Case Advocacy- A local legal organization providing families with resources and consultations: www.caseadvocacy.org
- Disability Rights California- Protection and advocacy system in California: www.disabilityrightsca.org
- Disability Rights Education & Defense Fund- A local organization providing free resources and advocay: dredf.org
- Parents' perceptions of functional abilities in people with Down syndrome (article)
- Wrightslaw- Accurate, reliable information about special education law, education law, and advocacy for children with disabilities: www.wrightslaw.com
Our Mission
To empower, inspire and support people with Down Syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.
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