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Expectant Parents

Welcome

We are here to support you in every way possible and welcome you to contact us with any questions you may have.  

We understand that this time must be filled with mixed emotions for you and your family, and we want you to know that you are not alone in your journey.  

Our Director of Family Support is available to new and expectant families 24/7. 
  • Contact: Michelle Slape - Michelle@dscba.org (925) 362-8660 x110 
  • Bilingual Family support is available for Spanish-speaking families.  

Below you will find information that can be helpful for this stage of your families journey, as well as programs offered for this Age & Stage. 

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New Family Resources


We would like to suggest that in reading about Down syndrome, you take your time and digest only the information that is helpful to you. It is our philosophy that your baby is a baby first, with Down syndrome second.

We offer free materials about Down syndrome in English and Spanish.

 

  • A Pregnant Mother’s Guide to Down Syndrome- downsyndromepregnancy.org
  • Understanding the Diagnosis of Down Syndrome- Click here for this resource from NDSS
  • The Parent’s Guide to Down Syndrome: Advice, Information, Inspiration, and Support for Raising Your Child from Diagnosis Through Adulthood- Available on Amazon
  • Babies with Down Syndrome: A New Parents’ Guide- Available on Amazon
  • Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives- Available here
  • There's nothing down about Down syndrome. Watch here
  • Moms are not sorry their children have Down Syndrome. Watch here
  • Breastfeeding
    • Breastfeeding & Down Syndrome:  A Comprehensive Guide For Mothers  and Medical Professionals Download
    • Nursing and Down Syndrome: A short guide to breastfeeding your baby Download

Breastfeeding and Down Syndrome

These moms have come together with a powerful message: babies with Down syndrome CAN breastfeed.

As many as 30% of mothers are told that their babies with Down syndrome may not be able to breastfeed or will be unable to do it as well as other babies. This video is a counterpoint to those voices and seeks to be a source of hope and inspiration for new mothers who wish to breastfeed their babies. This video is a counterpoint to those voices and seeks to be a source of hope and inspiration for new mothers who wish to breastfeed their babies. It features 11 women discussing their journeys to breastfeeding their babies with Down syndrome.

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Additional Breastfeeding Resources

  • Breastfeeding & Down Syndrome:  A Comprehensive Guide For Mothers  and Medical Professionals Download
  • Nursing and Down Syndrome: A short guide to breastfeeding your baby Download

Welcome Basket Program

We have a welcome basket program for new families. We deliver a basket full of fun gifts for baby, such as baby  books and handmade quilts and hats, as well as further information about Down syndrome that will assist parents as they begin their journey with their new baby.

Request Welcome Basket

Medical Outreach For Our Families


The DSCBA Medical Outreach Alliance works to improve the diagnosis experiences for families by improving communication about Down syndrome and resources provided by clinicians.

Tell Us Your Diagnosis Story

We'd like to learn more about the diagnosis experiences of new or expectant parents of children with Down syndrome. We also want to learn more about the information and resources offered when you received the news.

We'd appreciate it you would complete our survey and tell us about your diagnosis experience. 

 Click Here


 

Current Programs Available

Connection Groups

Early Connections offers a friendly and supportive environment for parents and their babies (ages 0–3). We share helpful information to support your baby’s development. Some months we invite guest speakers and focus on a specific topic.

2024 Schedule

Early Connections

Wednesdays - 7:00pm-8:30pm

  • Location: Zoom
  • Jan 10, Feb 7, March 13*, April 3, May 1, Jun 5, Jul 3, Aug 7, Sep 4, Oct 2, Nov 6, Dec 4

Saturdays - 9:30am-11:00am

  • Location: DSCBA Office, 101-J Town and Country Dr, Danville
  • Jan 20, Feb 24

Las Conexiones Tempranas ofrecen un entorno amigable y de apoyo para los padres y sus bebés (de 0 a 3 años). Compartimos virtualmente información útil para apoyar el desarrollo de su bebé. Algunos meses invitamos a oradores invitados y nos enfocamos en un tema específico.

CONEXIONES TEMPRANAS en español

 Jueves - 3:00pm - 4:30pm

Mom’s Coffee Chat

Moms of children of all ages are welcomed to join in on an opportunity to get together in the comfort of your own home with fellow moms and share in the joys and challenges of parenting.

2024 Meeting Time/Dates:

Please email Programs@dscba.org if you have any questions. 



Dad’s Night

Dads of children of all ages are welcomed to join in on an opportunity to get to meet other dads.  This is a perfect way to get together in the comfort of your own home with other dads and share in the joys and challenges of parenting.

2024 Meeting Time/Dates:

Please email Programs@dscba.org if you have any questions. 

Grandparents of children with Down syndrome are welcomed and encouraged to join this monthly group. This is an opportunity to exchange information, share common experiences, and be encouraged by other grandparents with similar issues and concerns.

2024 Meeting Time/Dates:

 

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Sibling Support

Brothers and sisters of those with Down syndrome tend to be compassionate, understanding, wonderful people. But we also know that being the brother or sister of someone with Down syndrome can have its tough times, too!  

If you would like more information about resources please contact info@dscba.org 


Additional Resources

Organizations:

  • Sibling Leadership Network: www.siblingleadership.org   
    • Provides siblings of individuals with disabilities tools to advocate for their sibling and for issues important to their family.
  • Sibling Support Project: www.siblingsupport.org
    • A national network to provide support to siblings of people with disabilities. Sibling support workshops (SIBSHOPS) are available throughout the country.
  • National Down Syndrome Congress for ADULT SIBLINGS: www.ndsccenter.org/adult-siblings 
  • National Down Syndrome Society: Caring For Your Family

Books about Siblings and Down syndrome*:

  • Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters
    • Brian Skotko and Susan Levine (Woodbine House, 2009). Uses a question and answer format to address questions from teens who have a sibling with Down syndrome.
  • 47 Strings: Tessa's Special Code
    • Carey, Becky (Little Creek Press, 2012). A big brother learns about his little sister’s special code. A book to help explain Down syndrome to young children.
  • Sibshops-
    • Meyer, Don and Patricia Vadasy, revised edition (Brookes Publishing, 2008). A guide to organizing workshops for siblings according to the SibShop model.
  • Special Brothers and Sisters-
    • Hames, Annette and Monica McCaffrey, editors (Jessica Kinsgley, 2005). Accounts from real-life siblings of children with special needs.
  • Special Siblings-
    • McHugh, Mary, Revised Edition (Brookes Publishing, 2003). Interviews with more than a 100 siblings and experts.
  • The Sibling Slam Book-
    • Meyer, Don, editor (Woodbine House, 2005). Eighty teenagers talk about what it is like to have a brother or sister with special needs.
  • The Sibling Survival Guide-Indispensable Information for Brothers and Sisters of Adults with Disabilities
    • Meyer, Don and Emily Holl, editors (Woodbine House, 2014). Advice for siblings on topics ranging from communication to medical and legal issues.
  • Views from Our Shoes
    • Meyer, Don, editor (Woodbine House, 1997). Essays from children who have a sibling with a disability.
  • We'll Paint the Octopus Red-
    • Stephanie Stuve-Bodeen, (Woodbine House, 1998). A little girl prepares to welcome her new baby brother with Down syndrome. Ages 3-7.
  • Your Loved One is Having a Baby with Down Syndrome-
    • When you learn that someone you love is expecting a baby with Down syndrome, you naturally have concerns, and wonder what to say and do. This book will help you through your initial, normal reactions of sadness, shock, and worry, and give you the information and perspective you need to welcome a baby with Down syndrome.

*Check to see if a copy is available to borrow from our Lending Library 

Email the Lending Library

We have several private Facebook Groups to serve the needs of our diverse membership.  Please click through the links to request to join. Our main Facebook page is located here.

  • Young Connections at DSCBA
    • A DSCBA Connection group for parents of young and elementary-aged children. This private group provides a place to share and support one another in a respectful environment. 
       
  • DSCBA Homeschoolers
    • This private group, a part of the Down Syndrome Connection of the Bay Area (DSCBA), is open to parents, family members and caregivers who homeschool a child or adult having Down syndrome. This group also welcomes parents or persons in the Bay Area seeking more information about homeschooling their loved one with Down syndrome. This is a place for families to ask questions and share advice, resources, and experiences about the unique challenges, added stress, struggles and successes of homeschooling. The focus is on helping each other to find possible solutions, along with sharing humorous stories, in a safe, non-judgmental environment.
  • DSCBA Conexión de Síndrome Down del Área de la Bahía
    • Down Syndrome Connection es una organización apasionada y dedicada a fomentar el potencial ilimitado en niños y adultos con síndrome de Down en todo el Área de la Bahía de San Francisco desde 1998.
      Este es un lugar para que las familias y cualquier persona con un ser querido con el síndrome de Down puedan hacer preguntas, compartir consejos, recursos y experiencias sobre los desafíos únicos, el estrés adicional, los retos y los éxitos. La atención se centra en ayudarse mutuamente a encontrar posibles soluciones, junto con historias divertidas, en un entorno seguro y sin prejuicios.
       
  • DSCBA Dual Diagnosis Support
    • This private group, a part of the Down Syndrome Connection of the Bay Area (DSCBA), is open to parents, family members, caregivers, and others working with a child or adult having Down syndrome and autism in the Bay Area. This group also welcomes parents or persons in the Bay Area seeking more information about a dual diagnosis of Down syndrome and autism.
      This is a place for families, and anyone touched by a person having dual diagnosis, to ask questions, share advice, resources, and experiences about the unique challenges, added stress, struggles and successes. The focus is on helping each other to find possible solutions, along with humorous stories, in a safe, non-judgmental environment.

Our Mission

To empower, inspire and support people with Down Syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.