
Behavior Change in Individuals with Down Syndrome
All behavior communicates something—and while some behaviors may be more challenging, they can significantly affect the independence and community participation of individuals with Down syndrome. These challenges may include difficulty with transitions, staying focused, respecting personal boundaries, or reluctance to engage in activities. This interactive presentation will explore the reasons behind behavior and how to identify the function of specific behaviors. Participants will learn practical tools and strategies to support positive behavior, improve engagement, and create a more inclusive and responsive environment.
Katie Frank PhD, OTR/L, has worked as an occupational therapist at the Adult Down Syndrome Center since 2016 and in the field of occupational therapy since 2001. Dr. Frank earned her degree in occupational therapy from Saint Louis University and her PhD in Disability Studies from the University of Illinois at Chicago. Most of her work has been with individuals with Down syndrome of all ages. Dr. Frank’s experience includes treatment and evaluation as well as facilitating groups for people with Down syndrome, conducting trainings for staff, families, and caregivers, and offering a variety of other educational opportunities across the United States and Internationally. Her research has been published in peer-reviewed journals. She is the immediate past-President of the Down Syndrome Medical Interest Group-USA. Additionally, she is a recipient of the Bonnie J Patterson Down Syndrome Excellence Award presented by DSMIG-USA.
Your support helps us educate, connect, and uplift individuals with Down syndrome and their families. With your sponsorship, we can bring in expert speakers, provide resources, and ensure accessibility for all attendees.

To empower, inspire and support people with Down Syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.