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DSCBA Resource Directory-  Most of the people and organizations in this guide were recommended by DSCBA members—those ones are designed with a checkmark. Entries not designated with a checkmark are referrals from other local disability organizations. Please note that DSCBA as an organization does not formally endorse any of the people or entities in this guide—we have simply compiled a list of resources recommended by our members and similar organizations in our community. This resource directory is a constantly updating work in progress. Click here for PDF 


National Organizations

National Down Syndrome Society: www.ndss.org

National Down Syndrome Congress: www.ndsccenter.org

Global Down Syndrome Foundation: www.globaldownsyndrome.org

LuMind Down Syndrome Research and Treatment Foundation: www.dsrf.org

Down Syndrome Education USA: www.dseusa.org

Down Syndrome Education International: www.downsed.org

Special Olympics: www.specialolympics.org

Best Buddies: www.bestbuddies.org

Spread the Word to End the Word: www.r-word.org

Boston Children's Hospital: Down Syndrome Program, Allen C. Crocker Speaker Series

Regional Centers

California Regional Center Guide and Descriptionscomprehensive list showing what services regional center can provide at the different ages.

Regional Center of the East Bay: www.rceb.org

Golden Gate Regional Center: www.ggrc.org

San Andreas Regional Center: www.sarc.org

North Bay Regional Center: www.nbrc.net

Bay Area Family Resource Centers

Family Resource Centers provide parent to parent support, outreach, information and referral services to families of children with disabilities and the professionals who serve them.  All centers serve families of children from birth to three years of age, and many have enhanced funding which allows them to serve families of children over the age of three and individuals with developmental disabilities. 

Matrix Parent Network & Resource Center, Novato: (415) 884-3535, (800) 578-2592, www.matrixparents.org

Parents Helping Parents, San Jose: (408) 727-5775, www.php.com

Family Resource Center, Burlingame: (650) 259-0189, www.communitygatepath.com

Family Resource Network, Oakland: (510) 547-7322, www.frnoakland.org

Support for Families of Children With Disabilities, San Francisco: (415) 282-7494, www.supportforfamilies.org

CARE Center for Access to Resources and Education, Martinez: (925) 313-0999, www.contracostaarc.com

Additional Links

Case Advocacy- A local legal organization providing families with resources and consultations: www.caseadvocacy.org

Disability Rights California- Protection and advocacy system in California: www.disabilityrightsca.org

Disability Rights Education & Defense Fund- A local organization providing free resources and advocay: dredf.org

Parents' perceptions of functional abilities in people with Down syndrome (article)

Wrightslaw- Accurate, reliable information about special education law, education law, and advocacy for children with disabilitieswww.wrightslaw.com

Woodbine House- Source for books on disabilities: www.woodbinehouse.com