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For Medical Professionals


The DSCBA offers information and resources to help you provide the best care possible for your patients with Down syndrome and for your new or expectant families.

We provide:

  • Presentations (via Zoom or, in non-COVID times, in person) for medical professionals and staff that includes:
    • Current information about Down syndrome
    • Supportive ways to deliver a diagnosis to a new family 
    • How to best support families receiving a new diagnosis
    • Local and national resources for families
  • Free materials to share with families about Down syndrome in English and Spanish. 
  • Some clinicians may also have questions about the specific implications of COVID-19 for people with Down syndrome.

Thank you for taking time to research options that will help you provide individuals with Down syndrome and their families the information, resources, and support they need.


If you are interested in scheduling a presentation like the one below, receiving medical outreach materials, or if you have additional questions, please contact us at MedicalOutreach@dscba.org or (925) 362-8660 x 104


 

Resources

More Information
  • Lettercase.org  - Understanding a Down Syndrome Diagnosis” is available for free as a web app and copies are available for purchase. Medical providers can receive one free copy or contact MedicalOutreach@dscba.org to arrange a copy. 

  • Brighter-tomorrows.org - Free on-line training module for medical professionals on how to deliver a diagnosis according to the recognized best practices. 

  • National Down Syndrome Adoption Network - The National Down Syndrome Adoption Network was created to offer hope to expectant and birth parents who felt they would not be able to parent their child, and wanted a loving alternative – adoption.  Review their booklet here, "A Loving Choice...Adoption as an Option".

  • DSMIG - Down Syndrome Medica Interest Group - USA
    • DSMIG-USA® is a group of health professionals committed to promoting the optimal health care and wellness of individuals with DS across the lifespan. Members of this DSMIG-USA® are professionals from a variety of disciplines who provide care to individuals with Down syndrome and/or their families. This may include physicians, scientists, psychologists, nurses, genetic counselors, educators, therapists, clinic coordinators, and related health professionals. Members may also include individuals who engage in research or health policy relevant to Down syndrome. Most members work in specialized Down syndrome clinics, at academic institutions, university- and community-based medical centers, or private practice. Students, Residents, Fellows and other Trainees are welcome to join.

The Down Syndrome Diagnosis Network has put together a video with recent diagnosis experiences from families and medical providers about how a Down syndrome diagnosis CAN go well. 

A Diagnosis Can Go Well - Down Syndrome Diagnosis Network